Rural Palliative Care in North India: Rapid Evaluation of a Program Using a Realist Mixed Method Approach
Authors
Daniel Munday
Palliative Care Team, International Nepal Fellowship, Kathmandu, Nepal
Erna Haraldsdottir
St Columba's Hospice, Edinburgh, United Kingdom
Manju Manak
Independent Consultant, Emmanuel Hospital Association, New Delhi, India
Ann Thyle
Palliative Care, Emmanuel Hospital Association, New Delhi, India
Cathy Ratcliff
EMMS International, Edinburgh, United Kingdom
Keywords:
Community health, palliative care, program evaluation, rural healthcare
Abstract
Context:
Palliative care has not developed widely in rural North India. Since 2010, the Emmanuel Hospitals Association (EHA) has been developing a model of palliative care appropriate for this setting, based on teams undertaking home visits with the backup of outpatient and inpatient services. A project to further develop the model operated from 2012 to 2015 supported by funding from the UK.
Aims:
This study aims to evaluate the EHA palliative care project.
Settings and Design:
Rapid evaluation method using a mixed method realist approach at the five project hospital sites.
Methods:
An overview of the project was obtained by analyzing project documents and key informant interviews. Questionnaire data from each hospital were collected, followed by interviews with staff, patients, and relatives and observations of home visits and other activities at each site.
Analysis:
Descriptive analysis of quantitative and thematic analysis of qualitative data was undertaken. Each site was measured against the Indian Minimum Standards Tool for Palliative Care (IMSTPC).
Results:
Each team followed the EHA model, with local modifications. Services were nurse led with medical support. Eighty percent of patients had cancer. Staff demonstrated good palliative care skills and patients and families appreciated the care. Most essential IMSTPC markers were achieved but morphine licenses were available to only two teams. Remarkable synergy was emerging between palliative care and community health. Hospitals planned to fund palliative care through income from surgical services.
Conclusions:
Excellent palliative care appropriate for rural north India is delivered through the EHA model. It could be extended to other similar sites.
Keywords: Community health, palliative care, program evaluation, rural healthcare
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