Parental Knoweldge, Attitude, and Perception about Epilepsy and Sociocultural Barriers to Treatment
Authors
Akanksha MPhil
Department of Psychiatric Social Work, National Institute of Mental Health and Neurosciences, Bengaluru,
India
Priya PhD
Department of Psychiatric Social Work, National Institute of Mental Health and Neurosciences, Bengaluru,
India
Keywords:
Parents, Child, Epilepsy, Sociocultural barriers
Abstract
Background and Purpose
The present study focused on assessing parental knowledge, attitudes, and perceptions about epilepsy as well as addressing the socio-cultural barriers to its treatment.
Methods
Data were collected from out-patient consultations in the neurology department of a tertiary referral center in South India. Parents of sixty children suffering from epilepsy in the age-group of 4–15 years were interviewed to explore their knowledge, attitudes, and perceptions about epilepsy. They were recruited in 2015 over a consecutive period of six months. The tools administered were: socio-demographic schedule; clinical profile; a knowledge, attitude, and perception questionnaire prepared by the researcher; and a few case studies with psychosocial interventions.
Results
The mean age of the parents who brought their children to the hospital was 37.2 years, with 71.7% being male, of which, 36% were educated up to secondary/intermediate level and were of lower socio-economic status. The mean age of the children with epilepsy was 8.4 years with 66.7% of them being male. Among them, 50% had the most commonly occurring generalized seizures and 26.7% had the co-morbid condition of cerebral palsy. Around 37.7% parents attributed the seizures to evil spirits or supernatural powers, 52.5% to mental illness, and 72.1% were influenced by their families to initially seek religio-spiritual or traditional treatment in desperation for a cure of the illness. In total, 91.8% of the parents visited holy places, made “mannats”, or prayed in worship for hours for their child’s recovery.
Conclusions
Creating awareness about epilepsy is important to address the socio-cultural barriers to its treatment and improve help-seeking behavior.
Keywords: Parents, Child, Epilepsy, Sociocultural barriers
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