Preprint / Version 1

At the frontlines of digitisation: a qualitative study on the challenges and opportunities in maintaining accurate, complete and timely digital health records in India’s government health system

Authors

  • Kerry Scott Department of International Health, International Health, Johns Hopkins Bloomberg School of Public Health, Baltimore, Maryland, USA
  • Osama Ummer Oxford Policy Management, New Delhi, Delhi, India
  • Sara Chamberlain BBC Media Action, Delhi, Delhi, India
  • Manjula Sharma Independent Researcher, New Delhi, Delhi, India
  • Dipanwita Gharai Oxford Policy Management, New Delhi, Delhi, India
  • Bibha Mishra Oxford Policy Management, New Delhi, Delhi, India
  • Namrata Choudhury Centre for the Study of Law and Governance, Jawaharlal Nehru University, New Delhi, Delhi, India
  • Diwakar Mohan Department of International Health, International Health, Johns Hopkins Bloomberg School of Public Health, Baltimore, Maryland, USA
  • Amnesty LeFevre School of Public Health and Family Medicine, University of Cape Town, Cape Town, Western Cape, South Africa

Keywords:

public health, health informatics, information management, information technology, health services administration & management

Abstract

Objectives To understand factors underpinning the accuracy and timeliness of mobile phone numbers and other health information captured in India’s government registry for pregnant and postpartum women. Accurate and timely registration of mobile phone numbers is necessary for beneficiaries to receive mobile health services. Setting Madhya Pradesh and Rajasthan states in India at the community, clinical, and administrative levels of the health system. Participants Interviews (n=59) with frontline health workers (FLHWs), data entry operators, and higher level officials. Focus group discussions (n=12) with pregnant women to discuss experiences with sharing data in the health system. Observations (n=9) of the process of digitization and of interactions between stakeholders for data collection. Primary and secondary outcome measures Thematic analysis identified how key actors experienced the data collection and digitisation process, reasons for late or inaccurate data, and mechanisms that can bolster timeliness and accuracy. Results Pregnant women were comfortable sharing mobile numbers with health workers, but many were unaware that their data moved beyond their FLHW. FLHWs valued knowing up-to-date beneficiary mobile numbers, but felt little incentive to ensure accuracy in the digital record system. Delays in registering pregnant women in the online portal were attributed to slow movement of paper records into the digital system and difficulties in gathering required documents from beneficiaries. Data, including women’s phone numbers, were handwritten and copied multiple times by beneficiaries and health workers with variable literacy. Supervision tended to focus on completeness rather than accuracy. Health system actors noted challenges with the digital system but valued the broader project of digitisation. Conclusions Increased focus on training, supportive supervision, and user-friendly data processes that prioritise accuracy and timeliness should be considered. These inputs can build on existing positive patient–provider relationships and health system actors’ enthusiasm for digitisation. Keywords: public health, health informatics, information management, information technology, health services administration & management

Downloads